tag:blogger.com,1999:blog-7613541552878863066.post5481330752236748766..comments2019-09-09T11:49:44.352-07:00Comments on 2q37 (Cromosome 2) Deletion Syndrome: My sweet girl, VictoriaDenisehttp://www.blogger.com/profile/09318758534864274332noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-7613541552878863066.post-10964147770639718352014-03-27T20:18:06.017-07:002014-03-27T20:18:06.017-07:00Just found you from Brielle and Me. I don't al...Just found you from Brielle and Me. I don't always write about my son (did not tonight or yesterday) but often do. His diagnosis is not "done" but we're thinking autism and speech delay, although he did not score for autism on his tests. He's very delayed socially and language-wise though. I'm so glad to have found another blog and look forward to getting to know more about you and your daughter. Kristi Campbellhttps://www.blogger.com/profile/08340629559188847788noreply@blogger.comtag:blogger.com,1999:blog-7613541552878863066.post-53787841690464758112012-09-18T20:11:07.725-07:002012-09-18T20:11:07.725-07:00Hello Mike! I am sorry for just now getting back w...Hello Mike! I am sorry for just now getting back with you. Thos is not the most user-friendly site so I quit blogging. I recently have had others contact me that have read my blog and have been conversing with them through Facebook! I have met some amazing people on there too!!! Here are some of the pages:<br /><br />2q37 deletion - Rare Chromosome Disorder https://www.facebook.com/#!/groups/134384803241581/<br /><br />Chromosome 2 Disorders<br />https://www.facebook.com/#!/groups/chromo2syndromes/<br /><br />Unique - Rare Chromosome Support Group<br />https://www.facebook.com/pages/Unique-Rare-Chromosome-Disorder-Support-Group/130797430472?ref=ts<br /><br />There are more, but this will keep you busy!!! My email is williamsrd08@yahoo.com if you would like to contact me in the future!<br /><br />I can also be found on Facebook as Denise Anderson Williams or copy and paste:<br />https://www.facebook.com/pages/Unique-Rare-Chromosome-Disorder-Support-Group/130797430472?ref=ts#!/denise.andersonwilliams<br /><br />Denisehttps://www.blogger.com/profile/17372185039101576378noreply@blogger.comtag:blogger.com,1999:blog-7613541552878863066.post-1985038603830341742011-10-10T14:02:23.825-07:002011-10-10T14:02:23.825-07:00Hello Denise! Thank you for the Blog. We have a 1...Hello Denise! Thank you for the Blog. We have a 18 month girl that has been diagnosed with Deletion Syndrome. My Daughter has hypotonia, curvage in the spine and heart condition. Your blog has been most helpful. I do have a few questions. If you would kindly answer. When did you start noticing Victoria was mentally delayed? Has Victoria beena able to attend a regular school or was she placed in speacial education classes? <br /><br />We just found out last week about our baby's condition, and would love to know what to expect in the future. Thank you for your time and look forward to reading your response.<br /><br />MikeMikehttps://www.blogger.com/profile/16069227480285798952noreply@blogger.comtag:blogger.com,1999:blog-7613541552878863066.post-78343060747219669362011-08-30T14:43:37.823-07:002011-08-30T14:43:37.823-07:00Good for you for writing a blog! I think writing i...Good for you for writing a blog! I think writing is VERY good therapy. <br /><br />You know Brielle, but for others.... <br /><br />I had the chicken pox when I was 6 weeks pregnant. We watched the pregnancy very closely and at 35 weeks they found her head circumference to be small. An amnio showed that she had been affected by a very common virus called cytomegalovirus (or CMV) -- it's in all the baby books and about 85% of all adults have had at some point in their lives. One in every 150 newborns will test positive for it, but a much smaller percentage are affected long term by the virus. <br /><br />Brielle is 15 now and is disabled. She has cerebral palsy. Brielle can walk but with a limp and her right hand doesn't work right. She can't talk, but uses sign language although she isn't deaf. She has cognitive delays as well. However, since we've been homeschooling for the last 15 months, she's made remarkable strides. <br /><br />One of the best part about Brielle's life is that Victoria is her best friend!Stull Family Lifehttps://www.blogger.com/profile/13873638400174674940noreply@blogger.com